One of the simplest yet most important things to remember in dementia caregiving is that routine is critical. When their day is unstructured, it can feel unpredictable and therefore unsafe for someone with dementia. Routine can provide this needed structure, for both the individual with dementia and the caregiver.
Individuals living with dementia often experience apathy. When someone’s become apathetic, they no longer show interest, enthusiasm or concern about their life. They may not notice or show any reaction to what’s going on around them. This is caused by damage to the frontal lobes of the brain – the area that controls motivation and the ability to plan or sequence actions.
While there’s no cure for dementia, there are things you can do to make your loved one as happy and comfortable as possible. Despite their diagnosis, they still have time left, maybe many years, so you should do everything you can to help them live well.
A lot of people think that dementia and Alzheimer’s are synonymous, but Alzheimer’s is just one condition that can cause dementia. Dementia is a descriptive term that covers impaired memory and the loss of other cognitive abilities.
Whether it’s painting, making music, or arts and crafts, creativity can reduce feelings of stress, anxiety, loneliness and depression and improve cognitive health. Participating in creative activities, or even just enjoying a performance can help individuals with dementia to be more present and engaged – and can even trigger long-forgotten memories.
Sometimes, a person has always been forceful or aggressive and they’re simply continuing this behavior, but that’s often not the case. So when someone you’ve known for years to be a kind and gentle person suddenly becomes mean or violent, it can be a huge emotional shock.
One of the challenges that many people caring for a parent with dementia face at some point is their parent’s refusal to accept care. When this happens to you, it might feel like your parent just wants to be difficult, but this resistance actually comes from the symptoms of dementia and the accompanying impaired mental functions. What comes off as stubbornness is often confusion, fear, stress or anxiety. It’s a frustrating experience, to be sure, but there are a few steps you can take to alleviate your parent’s concerns and make caregiving a more positive experience for you both.
Loving someone with dementia can be so difficult at times. It’s hard to remember on the ‘bad’ days, but they are still capable of feeling love, purpose, fulfillment and joy. The affection that they can show demonstrates how powerful human emotion is, even overcoming cognitive decline. There is joy beyond the diagnosis, not just gloom, and that’s true for you, your loved one and the entire family.