Millions of people are affected by dementia worldwide – including the people who care for them. 

Caregivers have an extremely demanding job, and it takes the highest level of patience and compassion. Over time, it can take a huge emotional toll.

In fact, previous studies show that caregivers are at an increased risk of developing depression and anxiety compared with non-caregivers. 

In this blog, we discuss how dementia caregiving can impact your mental well-being, how to prioritize your mental health, and when it’s time to ask for help.

The mental health effects of dementia caregiving

Providing care for a dementia patient – whether it’s a parent, spouse, or other family member – isn’t always easy. It’s a huge responsibility, and it comes with more than its fair share of stress. Many caregivers struggle with their mental health in general, and with depression and anxiety in particular. Here’s a few of the reasons why:

Lack of support

If you’re the sole caregiver for someone you love, it can feel like you’re carrying the weight of the world, with little support from others to help you shoulder it. Like you’re pouring all your care and energy into your parent or spouse, leaving nothing to care for yourself. It can be stressful and overwhelming, and over time, an absence of support can lead to caregiver depression or anxiety.

If you know someone who is a caregiver to an individual with dementia, here are the best ways to show your support!

Loss of cognitive functioning

It’s hard to watch a loved one decline as dementia symptoms set in. And as cognitive impairment progresses, dementia patients may become increasingly dependent on caregivers for activities of daily living like eating, bathing, dressing, and more. It can feel like the person you know is slipping away long before they’re truly gone. This kind of loss is sometimes called anticipatory grief, a form of depression in caregivers of dementia patients..

Physical toll and caregiver burden

Caregiving responsibilities are physically demanding, and the strain of being a full-time dementia caregiver can take a significant toll on the body. Dealing with interrupted sleep, constant worry that something may happen to your loved one, and trying to balance your personal life on top of it all can quickly lead to burnout. And these aren’t just physical problems – they can impact your moods and mental health, too, making it more difficult to cope with depression and anxiety.

Loss of personal life

As dementia progresses, your loved one’s life will change. And caring for a dementia patient will impact your quality of life, too. Stepping into the caregiver role often means putting your own life and hobbies aside while you prioritize their needs. After a while, you may find yourself mourning the loss of your social life or your “me-time”, leading to feelings of hopelessness and sadness.

Signs of anxiety and depression in caregivers

Depression, anxiety, and burnout are common among caregivers, but they can present themselves in different ways from person to person. It’s crucial to be aware of the symptoms so you can get the right help. 

Some of the most common behavioral and psychological symptoms of anxiety and depression include:

• Persistent feelings of sadness, worry, irritability, overwhelm, or hopelessness.
• No longer finding joy in things you once loved.
• Sleep disturbances and chronic fatigue.
• Lack of motivation to do things, from personal hygiene to completing work tasks or attending social gatherings.
• Pulling away from family members, friends, or support networks.
• Physical symptoms like headaches, nausea, digestive disorders, or aches and pains.

If you notice any of these depression symptoms in yourself or a loved one, it could be time to reach out for help.

Note: Severe depression or anxiety could lead to self harm or suicidal thoughts. If you experience this, call the suicide and crisis lifeline by dialling 988 immediately. If you would like more help with caregiving, you can find articles for dementia caregivers here. 

Coping strategies for family caregivers

If you’re a caregiver, you do everything you can to put your loved one’s well-being first. But it’s important to take care of yourself, too. The stronger and more stable you are, the better care you’ll be able to offer your loved one – and the more both patient and caregiver will benefit.

 Here are some ways you can prioritize your well-being:

• Prioritize sleep and nutrition: Taking care of yourself starts with the basics. Try to get a full 8 hours of sleep each night, fuel your body with healthy food, and stay well hydrated.
• Self-care: This will look different for everyone. It could be taking a 20-minute walk in the fresh air, reading a few pages of a book in the evening, or grabbing coffee once a week with a friend.
• Mindfulness: Practice meditation and deep breathing exercises to ground yourself when you feel your emotions are running high or you’re feeling anxious.
• Take a break: It’s not selfish to take some time away – it’s necessary. Taking a day trip, spending a night in a hotel, or simply spending some “me-time” at home will do you a world of good. Learn more about respite care here.
• Caregiver education: Seek out caregiver education opportunities to improve your coping skills, learn problem-solving techniques, and manage challenges more effectively.
• Online support groups: Sometimes it can help to connect with other caregivers – people who understand what you’re going through, who you can share your experiences with and get advice from. Online support groups and forums are great places to find a compassionate caregiver community. (Here is a list of local Round Rock support groups for caregivers!)
• In-person caregiver support system: You don’t have to do it all on your own. Healthcare providers often offer resources and information, and can help you access the support you need. A social worker can provide emotional support, connect caregivers to valuable resources, or help you find support groups and counseling.
• Professional help: Speaking to a trained mental health professional can help you process your emotions and find helpful coping strategies to deal with anxiety or depressive symptoms.
• Consider a dementia care home: If you’re struggling with your mental health, it might be time to consider finding a support system. Putting a loved one into a Memory Care home may feel like a betrayal, but it isn’t – far from it! Sometimes it’s the best step for both your own well-being and your loved one’s.

Taking on a family caregiving role is no small task. But remember, when it comes to protecting your mental health, you shouldn’t push your own needs to the side – you matter too.

When to ask for help

We understand the emotional weight caregivers carry on a daily basis, and we’re here to give you the help you need. If you’re experiencing any of the symptoms we’ve outlined above, it may be time to reach out.

Recovery from depression or anxiety takes time and patience, but support can make all the difference.

The dedicated team at Sundara Senior Living provides more than just memory care – we’re a supportive community of people offering compassionate care in a place that feels like home.

Get in touch with us today to see how we can offer respite for you and your family.